Fibrolamellar Registry A Source of Hope Action For Patients Families Fighting Fibrolamellar

A patient-powered registry linking medical histories with tissue samples to help cure fibrolamellar hepatocellular carcinoma.

OVERVIEW

This website fibroregistry.org currently has a traffic ranking of zero (the smaller the more traffic). We have scanned ten pages within the website fibroregistry.org and found twelve websites referencing fibroregistry.org. We have observed one contacts and addresses for fibroregistry.org to help you communicate with them. We have observed two social communication platforms possessed by this website. This website fibroregistry.org has been on the internet for six hundred and eighteen weeks, eight days, sixteen hours, and forty-six minutes.
Pages Crawled
10
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12
Contacts
1
Locations
1
Social Links
2
Online Since
Aug 2012

FIBROREGISTRY.ORG RANKINGS

This website fibroregistry.org has seen a alternation quantities of traffic through the year.
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FIBROREGISTRY.ORG HISTORY

This website fibroregistry.org was began on on August 26, 2012. It is currently six hundred and eighteen weeks, eight days, sixteen hours, and forty-six minutes old.
REGISTERED
August
2012

COMPANY PERIOD

11
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10
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LINKS TO WEB SITE

patientINFORM - Home

By allowing participating health organizations. The purpose of this site,. To find information about r.

The Rockefeller University Fibrolamellar Tissue Repository

Search The Rockefeller University Site. Sunday, August 16, 2015. The Tucker Davis Fibrolamellar Research Facility at The Rockefeller University. MAKE A FINANCIAL GIFT TO. Research on fibrolamellar hepatocellular carcinoma depends on the continued involvement of patients, families, and researchers alike.

Advocacy, Education Empowerment GeneticAlliance.org

CENA named as 1 of 34 PCORnet partner networks approved for PCORI funding. CENA represents over 28 rare and common conditions and employs PEER and Mosaic to improve participant centric data collection and research. Genetic Alliance and Private Access Launches Peerplatform. PEER helps to build communities of people who appreciate the need for accelerating medical research and who have value deciding why and with whom they entrust their personal health information.

The Max Burdette Memorial and The Max Burdette Fibrolamellar Cancer Research Foundation

The Max Burdette Fibrolamellar Cancer Research foundation. Who are you guys? Rugby player. Tae Kwon Do Black Belt. Sister Nicole, Brother Alec, Abby the Golden. Share your memories of max. Max in his cowboy boots.

WHAT DOES FIBROREGISTRY.ORG LOOK LIKE?

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CONTACTS

FibroRegistry

Rachael Migler

325 E. 84th St

NY, New York, 10028

US

FIBROREGISTRY.ORG HOST

I identified that the main page on fibroregistry.org took two thousand nine hundred and forty-six milliseconds to download. I detected a SSL certificate, so our web crawlers consider this site secure.
Load time
2.946 secs
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Internet Protocol
192.124.249.2

NAME SERVERS

ns09.domaincontrol.com
ns10.domaincontrol.com

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I identified that this domain is implementing the Sucuri/Cloudproxy server.

PAGE TITLE

Fibrolamellar Registry A Source of Hope Action For Patients Families Fighting Fibrolamellar

DESCRIPTION

A patient-powered registry linking medical histories with tissue samples to help cure fibrolamellar hepatocellular carcinoma.

CONTENT

This website fibroregistry.org had the following on the homepage, "A Source of Hope and Action For Patients and Families Fighting Fibrolamellar." We analyzed that the webpage said " Volunteer Your Time or Tissue to Research." It also stated " To see and learn even more!." The header had fibrolamellar as the highest ranking search term. It was followed by fibrolamellar hepatocellular carcinoma and fibrolamellar registry which isn't as ranked as highly as fibrolamellar.

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